A few weeks ago I and 13 other MPs wrote a joint letter to the Chief Executive of NHS England, raising urgent concerns about the difficulty experienced by constituents with MND securing Augmentative and Alternative Communication (AAC equipment). You can read our letterhere.
MND is a truly terrible disease that kills five people a day in the UK. It is a progressive disease that attacks the motor neurones in the brain and spinal cord, leaving people unable to walk, talk or feed themselves. Many sufferers of MND rely on using Augmentative and Alternative Communication (AAC) equipment to communicate with friends and family, so it is vital that they receive this support.
The response of NHS England can be read here. I note the assurances that these issues are being addressed and that sufferers should already be experiencing an improved service, and I will be working closely with the MND Association and others over the coming days to determine whether this is the case. If you are aware of anyone who is currently experiencing difficulty securing this equipment I would encourage you to contact the MND Association, to help us build up a clear picture and ensure that AAC support is available for all who depend upon it.